{"id":5558,"date":"2024-11-15T13:59:57","date_gmt":"2024-11-15T04:29:57","guid":{"rendered":"https:\/\/hepatitissa.asn.au\/communitynews\/?p=5558"},"modified":"2025-02-26T21:30:38","modified_gmt":"2025-02-26T12:00:38","slug":"empowering-change-reducing-stigma","status":"publish","type":"post","link":"https:\/\/hepatitissa.asn.au\/communitynews\/2024\/11\/empowering-change-reducing-stigma\/","title":{"rendered":"Empowering Change, Reducing Stigma"},"content":{"rendered":"\n<p class=\"has-drop-cap\">Much has been said about the stigma around sexually transmitted infections (STI) and blood-borne-viruses (BBV). If you work with people living with HIV, hepatitis B or hepatitis C, you would have heard about how stigma discourages people from testing, and how it affects the well-being of those who seek help or treatment. Conversations have mostly dwelt on the fact that it exists \u2013 until now.<\/p>\n\n\n\n<p style=\"margin-bottom:2rem\">In South Australia, a working group from SA Health&#8217;s STI BBV Advisory Committee has created a six-year plan with eight key action areas aimed at reducing stigma and discrimination towards people living with STIs and BBVs. Briefly, these action areas are:<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>Record <\/li>\n\n\n\n<li>Explain<\/li>\n\n\n\n<li>Educate<\/li>\n\n\n\n<li>Identify gaps<\/li>\n\n\n\n<li>Collaborative advocacy<\/li>\n\n\n\n<li>Share and communicate<\/li>\n\n\n\n<li>Broaden discussions<\/li>\n\n\n\n<li>System level intervention<\/li>\n<\/ul>\n\n\n\n<figure class=\"wp-block-pullquote\"><blockquote><p>&#8230;one thing we were absolutely sure of was that there was enough passion in South Australia to fuel this journey&#8230;<\/p><\/blockquote><\/figure>\n\n\n\n<p>The group began work in 2022 and wrapped up in 2024. Emma Williams from Relationships Australia <a href=\"https:\/\/www.rasa.org.au\/support\/services\/mosaic\/\" target=\"_blank\" rel=\"noreferrer noopener\">MOSAIC<\/a>, who co-facilitated the group with Jenny Grant from <a href=\"https:\/\/hepatitissa.asn.au\" target=\"_blank\" rel=\"noreferrer noopener\">Hepatitis SA<\/a>, said that people from many organisations, including peers, were sought to be part of the group.<\/p>\n\n\n\n<p>\u201cWe were unsure where our boat would sail to or how it would get there but one thing we were absolutely sure of was that there was enough passion in South Australia to fuel this journey,\u201d she said. \u201cThe group grew in membership until it ballooned into a huge battleship, which was great but how do we effectively fire our enquiries, intentions and solutions to the right targets?<\/p>\n\n\n\n<p>\u201cWe all agreed more information was required to be able to assist workers to guide people through the complaints process. The one thing we realised was that the very people, who can support this process, had no idea it was really an issue, as very few complaints were ever made.\u201d<\/p>\n\n\n\n<p>The working group reached out to various organisations which all \u201cvery generously gave their time and information\u201d. The result was a <a href=\"https:\/\/issuu.com\/hepccsa\/docs\/flowchart_sandd_final_june2024\" target=\"_blank\" rel=\"noreferrer noopener\">comprehensive flow char<\/a>t showing where and how you can report stigma and discrimination incidents.<\/p>\n\n\n\n<figure class=\"wp-block-image aligncenter size-full\"><a href=\"https:\/\/issuu.com\/hepccsa\/docs\/flowchart_sandd_final_june2024\"><img loading=\"lazy\" decoding=\"async\" width=\"831\" height=\"586\" src=\"https:\/\/hepatitissa.asn.au\/communitynews\/wp-content\/uploads\/2024\/11\/flowchart_Screenshot-2024-11-15_tinified.png\" alt=\"\" class=\"wp-image-5561\" srcset=\"https:\/\/hepatitissa.asn.au\/communitynews\/wp-content\/uploads\/2024\/11\/flowchart_Screenshot-2024-11-15_tinified.png 831w, https:\/\/hepatitissa.asn.au\/communitynews\/wp-content\/uploads\/2024\/11\/flowchart_Screenshot-2024-11-15_tinified-600x423.png 600w, https:\/\/hepatitissa.asn.au\/communitynews\/wp-content\/uploads\/2024\/11\/flowchart_Screenshot-2024-11-15_tinified-300x212.png 300w, https:\/\/hepatitissa.asn.au\/communitynews\/wp-content\/uploads\/2024\/11\/flowchart_Screenshot-2024-11-15_tinified-768x542.png 768w\" sizes=\"auto, (max-width: 831px) 100vw, 831px\" \/><\/a><figcaption class=\"wp-element-caption\">Click on image for full view.<\/figcaption><\/figure>\n\n\n\n<p>Before the working group disbanded, it was decided that the facilitators will continue working with the lived experience participants in a smaller group, as it would be \u201ceasier to achieve goals in smaller groups with specific goals to chase\u201d said Emma.<\/p>\n\n\n\n<p style=\"margin-bottom:0\">The action plan had allowed for a six-year implementation because \u201cwe know this is not something that will be fixed overnight\u201d, said Jenny. As discussed below, work has begun for some of the action items but many would involve negotiations, network building and time.<\/p>\n\n\n\n<h2 class=\"wp-block-heading\">Key Action Areas<\/h2>\n\n\n\n<ol class=\"wp-block-list\">\n<li><strong>Record:<\/strong> The first action item is to have better recording of instances of stigma and discrimination as complaints are not often made. The <em>Stigma and Discrimination Reporting Processes<\/em> flowchart was developed, laying in clear steps, the local reporting processes for the most common instances of stigma and discrimination including housing, health, employment and legal. \u201cThis tool is aimed at increasing reporting so there\u2019s a better record of instances of discrimination,\u201d said Jenny. \u201cIt helps staff in supporting their clients in making reports.\u201d The next steps will include awareness raising and dissemination to relevant service organisations and communities<\/li>\n\n\n\n<li><strong>Explain<\/strong>: This action item is the creation of a resource, in collaboration with people with a lived experience of STI and\/or BBV, explaining what stigma is. Work on this is in progress with a series of interviews recorded and currently being edited. The full video will be released early next year.<\/li>\n\n\n\n<li><strong>Educate:<\/strong> This item focuses on sourcing or developing educational resources for the workforce. \u201cWe know there are many resources out there in relation to stigma and discrimination. We will do a stocktake and use existing resources,\u201d said Jenny. \u201cWhatever we choose to use, we intend to include our lived experience community and come up with innovative and engaging ways to challenge stigma in the workforce.\u201d<\/li>\n<\/ol>\n\n\n\n<figure data-wp-context=\"{&quot;imageId&quot;:&quot;69d7492f7c850&quot;}\" data-wp-interactive=\"core\/image\" data-wp-key=\"69d7492f7c850\" class=\"wp-block-image aligncenter size-full wp-lightbox-container\"><img loading=\"lazy\" decoding=\"async\" width=\"533\" height=\"300\" data-wp-class--hide=\"state.isContentHidden\" data-wp-class--show=\"state.isContentVisible\" data-wp-init=\"callbacks.setButtonStyles\" data-wp-on--click=\"actions.showLightbox\" data-wp-on--load=\"callbacks.setButtonStyles\" data-wp-on-window--resize=\"callbacks.setButtonStyles\" src=\"https:\/\/hepatitissa.asn.au\/communitynews\/wp-content\/uploads\/2024\/11\/PKSC-montage-web.jpg\" alt=\"\" class=\"wp-image-5566\" srcset=\"https:\/\/hepatitissa.asn.au\/communitynews\/wp-content\/uploads\/2024\/11\/PKSC-montage-web.jpg 533w, https:\/\/hepatitissa.asn.au\/communitynews\/wp-content\/uploads\/2024\/11\/PKSC-montage-web-300x169.jpg 300w\" sizes=\"auto, (max-width: 533px) 100vw, 533px\" \/><button\n\t\t\tclass=\"lightbox-trigger\"\n\t\t\ttype=\"button\"\n\t\t\taria-haspopup=\"dialog\"\n\t\t\taria-label=\"Enlarge\"\n\t\t\tdata-wp-init=\"callbacks.initTriggerButton\"\n\t\t\tdata-wp-on--click=\"actions.showLightbox\"\n\t\t\tdata-wp-style--right=\"state.imageButtonRight\"\n\t\t\tdata-wp-style--top=\"state.imageButtonTop\"\n\t\t>\n\t\t\t<svg xmlns=\"http:\/\/www.w3.org\/2000\/svg\" width=\"12\" height=\"12\" fill=\"none\" viewBox=\"0 0 12 12\">\n\t\t\t\t<path fill=\"#fff\" d=\"M2 0a2 2 0 0 0-2 2v2h1.5V2a.5.5 0 0 1 .5-.5h2V0H2Zm2 10.5H2a.5.5 0 0 1-.5-.5V8H0v2a2 2 0 0 0 2 2h2v-1.5ZM8 12v-1.5h2a.5.5 0 0 0 .5-.5V8H12v2a2 2 0 0 1-2 2H8Zm2-12a2 2 0 0 1 2 2v2h-1.5V2a.5.5 0 0 0-.5-.5H8V0h2Z\" \/>\n\t\t\t<\/svg>\n\t\t<\/button><figcaption class=\"wp-element-caption\">Participants in &#8216;The Stigma Interviews&#8217; explain what stigma meant to them, and how healthcare workers can stop stigmatisation of people to whom they provide services.<\/figcaption><\/figure>\n\n\n\n<ol start=\"5\" class=\"wp-block-list\">\n<li><strong>Identify Gaps<\/strong>: Stigma related actions in the South Australian HIV and viral hepatitis implementation plans were assessed against the corresponding national strategies in consultation with the sector. The plans have been finalised with action items relating to stigma.<\/li>\n\n\n\n<li><strong>Collaborative advocacy<\/strong>: This action area focuses on working collaboratively with other groups to advocate for changes, for example, for the removal of legislation such as the mandatory testing legislation, and for the introduction of anti-vilification laws in South Australia.<\/li>\n\n\n\n<li><strong>Share and communicate:<\/strong> Create a stigma and discrimination community of practice which can provide leadership and collaboration in the sector, in the response to stigma and discrimination issues.<\/li>\n\n\n\n<li><strong>National discussions:<\/strong> Facilitate discussions and seminars with presentations from peak bodies and researchers to present current works and seek opportunities for collaboration.<\/li>\n\n\n\n<li><strong>System level interventions<\/strong>: Consider and advocate for system-wide changes such as supporting the work on a <a href=\"https:\/\/harmreductionjournal.biomedcentral.com\/articles\/10.1186\/s12954-022-00658-w#:~:text=A%20universal%20precautions%20approach%20to%20stigma%20(and%20quality%20of%20care,(whether%20intended%20or%20not)%2C\" target=\"_blank\" rel=\"noreferrer noopener\">universal precautions approach<\/a> being carried out by the Centre for Social Research in Health (CSRH) at the University of New South Wales.<\/li>\n<\/ol>\n\n\n\n<p>Both Emma and Jenny stressed strongly the importance of getting guidance from those who have lived it. \u201cThe input of people who have continued exposure to stigma and discrimination has been incredibly valuable and is completely necessary to ensure that all those voices are heard,\u201d said Emma. \u201cWe are very thankful that they have given their time and relived those experiences in order to contribute to this very important solution focussed discussion and process.\u201d<\/p>\n\n\n\n<p>This project will be presented at the <a href=\"https:\/\/www.unsw.edu.au\/research\/csrh\/tackling-stigma\" target=\"_blank\" rel=\"noreferrer noopener\">Tackling Stigma Conference 2024<\/a> in Sydney, 22-24 November, where parts of <em>The Stigma Interviews<\/em> video will be played.<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Much has been said about the stigma around sexually transmitted infections (STI) and blood-borne-viruses (BBV). If you work with people living with HIV, hepatitis B or hepatitis C, you would &hellip;<\/p>\n","protected":false},"author":2,"featured_media":5565,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_FSMCFIC_featured_image_caption":"","_FSMCFIC_featured_image_nocaption":"","_FSMCFIC_featured_image_hide":"","footnotes":""},"categories":[10,11],"tags":[32,34,61,141],"issue":[],"ppma_author":[56],"class_list":["post-5558","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-community","category-policies-research","tag-hepatitis-c","tag-hepatitis-b","tag-stigma","tag-hiv"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.2 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Empowering Change, Reducing Stigma | HepSA Community News<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/hepatitissa.asn.au\/communitynews\/2024\/11\/empowering-change-reducing-stigma\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Empowering Change, Reducing Stigma | HepSA Community News\" \/>\n<meta property=\"og:description\" content=\"Much has been said about the stigma around sexually transmitted infections (STI) and blood-borne-viruses (BBV). 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