{"id":5136,"date":"2024-09-13T10:58:19","date_gmt":"2024-09-13T01:28:19","guid":{"rendered":"https:\/\/hepatitissa.asn.au\/communitynews\/?p=5136"},"modified":"2025-04-10T09:42:40","modified_gmt":"2025-04-10T00:12:40","slug":"in-our-library-personal-stories-of-diagnosis-treatment-cure","status":"publish","type":"post","link":"https:\/\/hepatitissa.asn.au\/communitynews\/2024\/09\/in-our-library-personal-stories-of-diagnosis-treatment-cure\/","title":{"rendered":"Personal Stories of Diagnosis, Treatment and Cure"},"content":{"rendered":"\n<p class=\"has-drop-cap\">Personal stories go beyond a sharing of events \u2013 they help to break down barriers and reduce stigma by \u2018normalising\u2019 previously taboo subjects. Sharing these experiences spreads real information about the effects on physical health, mental health, and social connection \u2013 and can share practical advice about how to access services and what happens in those services.<\/p>\n\n\n\n<p>Hopefully these first-hand stories can serve to encourage others to take the initial steps in being tested and treated; they are shared by people from a variety of walks of life &#8211; with different experiences of dealing with hepatitis.<\/p>\n\n\n\n<div class=\"wp-block-media-text is-stacked-on-mobile\" style=\"grid-template-columns:51% auto\"><figure class=\"wp-block-media-text__media\"><a href=\"https:\/\/www.hepatitisaustralia.com\/blogs\/stories\"><img loading=\"lazy\" decoding=\"async\" width=\"571\" height=\"400\" src=\"https:\/\/hepatitissa.asn.au\/communitynews\/wp-content\/uploads\/2024\/09\/livedexp-small2.png\" alt=\"\" class=\"wp-image-5197 size-full\" srcset=\"https:\/\/hepatitissa.asn.au\/communitynews\/wp-content\/uploads\/2024\/09\/livedexp-small2.png 571w, https:\/\/hepatitissa.asn.au\/communitynews\/wp-content\/uploads\/2024\/09\/livedexp-small2-300x210.png 300w\" sizes=\"auto, (max-width: 571px) 100vw, 571px\" \/><\/a><\/figure><div class=\"wp-block-media-text__content\">\n<h2 class=\"wp-block-heading\" style=\"margin-bottom:0\"><strong><a href=\"https:\/\/www.hepatitisaustralia.com\/blogs\/stories\" target=\"_blank\" rel=\"noreferrer noopener\">Lived experience stories<\/a><\/strong><\/h2>\n\n\n\n<p style=\"margin-top:0;margin-bottom:var(--wp--preset--spacing--default)\"><em>Hepatitis Australia, Canberra. 6 short stories.<\/em><\/p>\n\n\n\n<p style=\"margin-top:0\">A selection of personal stories from people in Australia who have been affected by hepatitis B or hepatitis C. They discuss the challenges they have faced, what they have learned on their journey and, for some, the joy of being cured of hepatitis C.<\/p>\n<\/div><\/div>\n\n\n\n<div class=\"wp-block-media-text has-media-on-the-right is-stacked-on-mobile\" style=\"grid-template-columns:auto 49%\"><div class=\"wp-block-media-text__content\">\n<h2 class=\"wp-block-heading\" style=\"margin-bottom:0\"><strong><a href=\"https:\/\/www.youtube.com\/watch?v=CI0oahzden8\" target=\"_blank\" rel=\"noreferrer noopener\">Joseph Li: a fibroscan saved my life<\/a><\/strong><\/h2>\n\n\n\n<p style=\"margin-top:0;margin-bottom:var(--wp--preset--spacing--default)\"><em>Hepatitis SA, Adelaide, 2024. Video 16:14 minutes<\/em><\/p>\n\n\n\n<p style=\"margin-top:0;margin-bottom:var(--wp--preset--spacing--default)\">Joseph Li \u2013 and his wife Julie \u2013 talk about his hepatitis B story and how a fibroscan clinic organised by Hepatitis SA at his local community association, led to an early diagnosis of liver cancer, which he believes &#8220;saved his life&#8221;. In Cantonese with English subtitles.<\/p>\n<\/div><figure class=\"wp-block-media-text__media\"><img loading=\"lazy\" decoding=\"async\" width=\"538\" height=\"300\" src=\"https:\/\/hepatitissa.asn.au\/communitynews\/wp-content\/uploads\/2024\/09\/joseph-small.png\" alt=\"\" class=\"wp-image-5195 size-full\" srcset=\"https:\/\/hepatitissa.asn.au\/communitynews\/wp-content\/uploads\/2024\/09\/joseph-small.png 538w, https:\/\/hepatitissa.asn.au\/communitynews\/wp-content\/uploads\/2024\/09\/joseph-small-300x167.png 300w\" sizes=\"auto, (max-width: 538px) 100vw, 538px\" \/><\/figure><\/div>\n\n\n\n<div class=\"wp-block-media-text is-stacked-on-mobile is-vertically-aligned-center\" style=\"grid-template-columns:37% auto\"><figure class=\"wp-block-media-text__media\"><img loading=\"lazy\" decoding=\"async\" width=\"962\" height=\"1402\" src=\"https:\/\/hepatitissa.asn.au\/communitynews\/wp-content\/uploads\/2024\/09\/20240828075043-rowImageFile-4-2.jpg\" alt=\"\" class=\"wp-image-5143 size-full\" srcset=\"https:\/\/hepatitissa.asn.au\/communitynews\/wp-content\/uploads\/2024\/09\/20240828075043-rowImageFile-4-2.jpg 962w, https:\/\/hepatitissa.asn.au\/communitynews\/wp-content\/uploads\/2024\/09\/20240828075043-rowImageFile-4-2-600x874.jpg 600w, https:\/\/hepatitissa.asn.au\/communitynews\/wp-content\/uploads\/2024\/09\/20240828075043-rowImageFile-4-2-300x437.jpg 300w, https:\/\/hepatitissa.asn.au\/communitynews\/wp-content\/uploads\/2024\/09\/20240828075043-rowImageFile-4-2-768x1119.jpg 768w\" sizes=\"auto, (max-width: 962px) 100vw, 962px\" \/><\/figure><div class=\"wp-block-media-text__content\">\n<h2 class=\"wp-block-heading\" style=\"margin-top:0;margin-bottom:0\"><strong><a href=\"https:\/\/www.hep.org.au\/product\/tx-mag-44\/\" target=\"_blank\" rel=\"noreferrer noopener\">TX! Mag: \u2018getting\u2019 it right\u2019 and \u2018 don\u2019t wanna lose you\u2019<\/a><\/strong><\/h2>\n\n\n\n<p style=\"margin-top:0;margin-bottom:var(--wp--preset--spacing--default)\"><em>Hepatitis NSW, Sydney, 2024. 32p.<\/em><\/p>\n\n\n\n<p style=\"margin-top:0;margin-bottom:0\">Easy-read magazine featuring real stories from people affected by hep C : young Andy got hep C sharing a fit. Stigma and discrimination weigh heavily upon his mind, but Aunty Liz gives great information and assists Andy on his treatment journey. Laura has had hep C for years and really, REALLY does not want to talk about it. However, her daughter, Katie, has other ideas.<\/p>\n<\/div><\/div>\n\n\n\n<div class=\"wp-block-media-text has-media-on-the-right is-stacked-on-mobile\" style=\"grid-template-columns:auto 52%\"><div class=\"wp-block-media-text__content\">\n<h2 class=\"wp-block-heading\" style=\"margin-bottom:0\"><a href=\"https:\/\/www.youtube.com\/watch?v=SNzVET5Xfy0\" target=\"_blank\" rel=\"noreferrer noopener\"><strong>Powerful and free: an honest conversation about hepatitis B<\/strong><\/a><\/h2>\n\n\n\n<p style=\"margin-top:0\"><em>Hepatitis Queensland, Brisbane, 2022. Video 5:19 minutes<\/em><\/p>\n\n\n\n<p>Since her diagnosis Bec has realised there is a lack of understanding about hep B, both from health care providers and Indigenous community. \u201c\u2026many barriers stand in the way of access to treatment which must be broken down before we can begin to address how the virus is transmitted and what it means to be a carrier&#8221;.<\/p>\n<\/div><figure class=\"wp-block-media-text__media\"><a href=\"https:\/\/www.youtube.com\/watch?v=SNzVET5Xfy0\"><img loading=\"lazy\" decoding=\"async\" width=\"537\" height=\"300\" src=\"https:\/\/hepatitissa.asn.au\/communitynews\/wp-content\/uploads\/2024\/09\/powerful-free-small.png\" alt=\"\" class=\"wp-image-5194 size-full\" srcset=\"https:\/\/hepatitissa.asn.au\/communitynews\/wp-content\/uploads\/2024\/09\/powerful-free-small.png 537w, https:\/\/hepatitissa.asn.au\/communitynews\/wp-content\/uploads\/2024\/09\/powerful-free-small-300x168.png 300w\" sizes=\"auto, (max-width: 537px) 100vw, 537px\" \/><\/a><\/figure><\/div>\n\n\n\n<div class=\"wp-block-media-text is-stacked-on-mobile\" style=\"grid-template-columns:37% auto\"><figure class=\"wp-block-media-text__media\"><img loading=\"lazy\" decoding=\"async\" width=\"962\" height=\"1360\" src=\"https:\/\/hepatitissa.asn.au\/communitynews\/wp-content\/uploads\/2024\/09\/20240828075043-rowImageFile-8-4.jpg\" alt=\"\" class=\"wp-image-5142 size-full\" srcset=\"https:\/\/hepatitissa.asn.au\/communitynews\/wp-content\/uploads\/2024\/09\/20240828075043-rowImageFile-8-4.jpg 962w, https:\/\/hepatitissa.asn.au\/communitynews\/wp-content\/uploads\/2024\/09\/20240828075043-rowImageFile-8-4-600x848.jpg 600w, https:\/\/hepatitissa.asn.au\/communitynews\/wp-content\/uploads\/2024\/09\/20240828075043-rowImageFile-8-4-300x424.jpg 300w, https:\/\/hepatitissa.asn.au\/communitynews\/wp-content\/uploads\/2024\/09\/20240828075043-rowImageFile-8-4-768x1086.jpg 768w\" sizes=\"auto, (max-width: 962px) 100vw, 962px\" \/><\/figure><div class=\"wp-block-media-text__content\">\n<p style=\"margin-bottom:0\"><a href=\"https:\/\/issuu.com\/hepatitisnsw\" target=\"_blank\" rel=\"noreferrer noopener\"><strong>Write to be heard: hepatitis B stories from the Chinese and Korean communities \ud55c\uad6d\uc5b4 B\ud615 \uac04\uc5fc \uc218\uae30 \uacf5\ubaa8 \ub2f9\uc120\uc791 \ubaa8\uc74c \u4e59\u809d\u6545\u4e8b\u5f81\u6587\u7ade\u8d5b \u4e2d\u6587\u53c2\u8d5b\u4f5c\u54c1<\/strong><\/a><\/p>\n\n\n\n<p style=\"margin-top:0\"><em>Hepatitis NSW, Sydney, 2022. 29-41p.<\/em><\/p>\n\n\n\n<p>This tri-lingual printed book contains twelve personal stories detailing lived experience, from people in NSW communities affected by hepatitis B.<\/p>\n\n\n\n<p><a href=\"https:\/\/issuu.com\/hepatitisnsw\/docs\/hepbstoriesbook_fa_issuu_chinese\" target=\"_blank\" rel=\"noreferrer noopener\">Chinese version<\/a>&nbsp;| <a href=\"https:\/\/issuu.com\/hepatitisnsw\/docs\/hepbstoriesbook_fa_issuu_english\" target=\"_blank\" rel=\"noreferrer noopener\">English version&nbsp;| <\/a><a href=\"https:\/\/issuu.com\/hepatitisnsw\/docs\/hepbstoriesbook_fa_issuu_korean\" target=\"_blank\" rel=\"noreferrer noopener\">Korean version<\/a><\/p>\n<\/div><\/div>\n\n\n\n<div class=\"wp-block-media-text has-media-on-the-right is-stacked-on-mobile\" style=\"grid-template-columns:auto 37%\"><div class=\"wp-block-media-text__content\">\n<h2 class=\"wp-block-heading\" style=\"margin-bottom:0\"><strong><a href=\"https:\/\/vitalvoicesonhepc.org\/\" target=\"_blank\" rel=\"noreferrer noopener\">Vital voices: personal stories of hepatitis C, treatment and cure<\/a><\/strong><\/h2>\n\n\n\n<p style=\"margin-top:0\"><em>Australian Research Centre in Sex, Health and Society &amp; Centre for Social Research in Health, Sydney\/Melbourne, 2022. Website.<\/em><\/p>\n\n\n\n<p>Aims to support people living with hep C thinking about treatment and to inform the public about hep C. Based on 50 interviews across age, gender (inc. non-binary) and different cultural backgrounds.<\/p>\n<\/div><figure class=\"wp-block-media-text__media\"><a href=\"https:\/\/vitalvoicesonhepc.org\/\"><img loading=\"lazy\" decoding=\"async\" width=\"962\" height=\"1137\" src=\"https:\/\/hepatitissa.asn.au\/communitynews\/wp-content\/uploads\/2024\/09\/20240828075043-rowImageFile-10-5.jpg\" alt=\"\" class=\"wp-image-5137 size-full\" srcset=\"https:\/\/hepatitissa.asn.au\/communitynews\/wp-content\/uploads\/2024\/09\/20240828075043-rowImageFile-10-5.jpg 962w, https:\/\/hepatitissa.asn.au\/communitynews\/wp-content\/uploads\/2024\/09\/20240828075043-rowImageFile-10-5-600x709.jpg 600w, https:\/\/hepatitissa.asn.au\/communitynews\/wp-content\/uploads\/2024\/09\/20240828075043-rowImageFile-10-5-300x355.jpg 300w, https:\/\/hepatitissa.asn.au\/communitynews\/wp-content\/uploads\/2024\/09\/20240828075043-rowImageFile-10-5-768x908.jpg 768w\" sizes=\"auto, (max-width: 962px) 100vw, 962px\" \/><\/a><\/figure><\/div>\n\n\n\n<div class=\"wp-block-media-text is-stacked-on-mobile\" style=\"grid-template-columns:52% auto\"><figure class=\"wp-block-media-text__media\"><a href=\"https:\/\/www.hepqld.asn.au\/resource\/living-well-with-hepatitis-b-ayanda-is-pregnant\/\"><img loading=\"lazy\" decoding=\"async\" width=\"533\" height=\"300\" src=\"https:\/\/hepatitissa.asn.au\/communitynews\/wp-content\/uploads\/2024\/09\/pregnant-small.png\" alt=\"\" class=\"wp-image-5193 size-full\" srcset=\"https:\/\/hepatitissa.asn.au\/communitynews\/wp-content\/uploads\/2024\/09\/pregnant-small.png 533w, https:\/\/hepatitissa.asn.au\/communitynews\/wp-content\/uploads\/2024\/09\/pregnant-small-300x169.png 300w\" sizes=\"auto, (max-width: 533px) 100vw, 533px\" \/><\/a><\/figure><div class=\"wp-block-media-text__content\">\n<h2 class=\"wp-block-heading\" style=\"margin-bottom:0\"><strong><a href=\"https:\/\/www.hepqld.asn.au\/resource\/living-well-with-hepatitis-b-ayanda-is-pregnant\/\" target=\"_blank\" rel=\"noreferrer noopener\">Ayanda is pregnant<\/a><\/strong><\/h2>\n\n\n\n<p style=\"margin-top:0\"><em>Hepatitis Queensland, Brisbane, 2020. Video 1:52 minutes<\/em><\/p>\n\n\n\n<p>This animation shows Ayanda talking to a health nurse about how hepatitis B may affect her and her baby (exploring the context for women who have immigrated from high prevalence countries). Part of the Living Well with Hepatitis B set of resources available from this link.<\/p>\n<\/div><\/div>\n\n\n\n<p><strong>More personal stories in a variety of formats are available&nbsp;<a href=\"https:\/\/hepsa.catalyst-koha.com.au\/cgi-bin\/koha\/opac-shelves.pl?op=view&amp;shelfnumber=202&amp;sortfield=copyrightdate&amp;direction=desc\" target=\"_blank\" rel=\"noreferrer noopener\">via our catalogue.<\/a><\/strong> <\/p>\n\n\n\n<p>Please&nbsp;<a href=\"mailto:admin@hepsa.sa.asn\" target=\"_blank\" rel=\"noreferrer noopener\">contact us&nbsp;<\/a>for more information or assistance in accessing resources.<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Personal stories go beyond a sharing of events \u2013 they help to break down barriers and reduce stigma by \u2018normalising\u2019 previously taboo subjects. Sharing these experiences spreads real information about &hellip;<\/p>\n","protected":false},"author":4,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_FSMCFIC_featured_image_caption":"","_FSMCFIC_featured_image_nocaption":"","_FSMCFIC_featured_image_hide":"","footnotes":""},"categories":[12],"tags":[277],"issue":[],"ppma_author":[58],"class_list":["post-5136","post","type-post","status-publish","format-standard","hentry","category-resources","tag-library"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.2 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Personal Stories of Diagnosis, Treatment and Cure | HepSA Community News<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/hepatitissa.asn.au\/communitynews\/2024\/09\/in-our-library-personal-stories-of-diagnosis-treatment-cure\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Personal Stories of Diagnosis, Treatment and Cure | HepSA Community News\" \/>\n<meta property=\"og:description\" content=\"Personal stories go beyond a sharing of events \u2013 they help to break down barriers and reduce stigma by \u2018normalising\u2019 previously taboo subjects. Sharing these experiences spreads real information about &hellip;\" \/>\n<meta property=\"og:url\" content=\"https:\/\/hepatitissa.asn.au\/communitynews\/2024\/09\/in-our-library-personal-stories-of-diagnosis-treatment-cure\/\" \/>\n<meta property=\"og:site_name\" content=\"HepSA Community News\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/HepatitisSA\" \/>\n<meta property=\"article:published_time\" content=\"2024-09-13T01:28:19+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2025-04-10T00:12:40+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/hepatitissa.asn.au\/communitynews\/wp-content\/uploads\/2024\/09\/livedexp-small2.png\" \/>\n\t<meta property=\"og:image:width\" content=\"571\" \/>\n\t<meta property=\"og:image:height\" content=\"400\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/png\" \/>\n<meta name=\"author\" content=\"Joy Sims\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" 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